Myasthenia Gravis

Raising the profile of a rare Autoimmune Disorder as new treatments are under consideration in the UK

Can you give a voice to people living with a rare auto-immune disorder? Myasthenia Gravis is a rare condition which causes muscle weakness and fatigue more commonly in the eyes, eyelids and face. It affects young and old and is life-altering, and sometimes life-threatening. The good news is that new treatments are in development and under consideration in the UK, and now is the time for this small charity to be noticed.

Can you work in partnership with an agile and passionate team to create a campaign which will grab attention of multiple audiences and communicate what it is like to live day-to-day with this condition. You will be able to build this by tapping into a rich source of patient data, testimonials and personal stories.

On a day-to-day basis this organisation connects with patients through online events, offers peer support programmes, benefits and welfare advice and provides individual on-line and telephone support.

If you are looking for an opportunity to demonstrate your approach to patient
story-telling, this one is for you. Please get in touch soon.

Timing: May to September

Skills: Creativity, disease awareness campaigning, patient storytelling